Wednesday, May 2, 2018

It's All About The Food Over Here

Well, I didn't get this post done before the end of Autism Awareness month, but y'all get to read it anyway, because it's Always Autism Awareness month at our house :)
James loves food. It’s his drug of choice. Literally. He likes oatmeal, and eats it almost every day. But he LOVES pizza, and will eat a whole pie by himself and have a stomach ache, then get up at 2am and try to make another one. He eats mustard (and sometimes ketchup) with everything. Pretzels, bacon, fish sticks, fries, bread, etc. He likes normal stuff like PB&J- grape jelly only please with creamy pb and cut into 4 squares, tuna fish- made with just mayo and hold the bread, hot dogs with- you guessed it- ketchup and mustard, toast, plain or salt and vinegar potato chips, Doritos, mac'n'cheese, pancakes, chicken nugget happy meals from McD’s, chocolate milk, soda, cheese sticks, apples and peanut butter, tomatoes, pineapple, kiwis, bananas, strawberries, cucumbers, celery, watermelon, peaches, cherries, grapes, carrots, baby oranges, OutShine grape popsicles, anything chocolate, sweet potato pie, and loads more that I can’t think of right now, but all of it terribly specific.
I’m really lucky that James is such a good eater, a lot of autistic kids really struggle with foods and eating. James has struggled a little bit, but mostly when he younger, and more with not being able to digest things. We have had him on a dairy free/gluten free diet since he was 3, and we have slowly upgraded him to organic whole wheat and organic dairy (in small quantities) in the last year or so. We've also had to be careful about giving him meat. He loves hot dogs, bologna, pepperoni, bacon, and sausage, and will eat meat in Large quantities. For example, he could eat a whole package of bacon by himself when he was 5. But he doesn't digest it well, and we have to make sure that we limit it to a normal sized portion and not too often. We can tell when he’s had too much of something he shouldn't have, because he gets stinky-gassy and complains that his stomach hurts. It also happens when he overeats. We have to be really careful not to let him overeat. It’s a weird problem to have but it’s nicer than having to force feed him. He actually likes food so much that he’s started helping me cook. He nibbles at garlic, onions, and salad, he stirs things on the stove, cuts veggies up for me, adds butter or salt to whatever is in a pan on the stove, and sometimes I wake up and see eggs, sugar and milk all mixed together in a pan in the oven. Sometimes it’s frustrating, like when he adds frozen veggies to my boiling potatoes, or puts noodles in water before it’s ready, but it’s also really cute that he’s trying to help. 
He’s really good at cleaning too. He puts his dishes in the sink and rinses them off if they are dirty. He puts his leftovers in the trash and puts food in the fridge. He unloads the dishwasher, takes out the trash, puts a new bag in the trash can, takes out the recycling, moves the laundry from the washer to the dryer and then to the basket and puts it in the couch. He puts his toys away, puts his laundry in the basket, and tries to wash out his poopy pull-ups when he has an accident, and he wipes up his spills off the floor. He even helped us rake up the leaves in the backyard a few months ago. He loves to go to the dump with Tom too. He doesn't do most of these things all by himself, he still needs verbal prompts and a buddy to assist sometimes, but it’s progress. Another emerging skill is grocery shopping. He likes to put the food on the conveyor belt, bag the groceries, put them in the cart, load them into the car, bring them into the house, unload the bags onto the counter and put them away. I’m just happy he likes to help :)
One more thing I forgot to mention, he LOVES to remove nail polish. He likes to have me paint them, but he REALLY likes taking the polish off too lol! I should be taking more pics of him helping out with stuff, but mostly I'm busy encouraging or directing him to get it done, so......


Monday, April 16, 2018

It's Great To Be 8.....Or 9.....And Autistic

Many of you know that we are members of The Church of Jesus Christ of Latter-day Saints. One of our customs is for the children to baptized at the age of 8, After they have been interviewed to be sure that they understand the doctrine, of course. What does this have to do with autism, you wonder lol! Well, when your child is unable to understand the commitment they are making by being baptized, you may choose not to have have them baptized. We had to make that choice with James. It was especially hard because he's the last baby, numero cinco, and I was really looking forward to savoring all the 'one last time' moments in his life. This was going to be the last time I would have a child baptized. 
And then he couldn't be baptized. 
There are so many 'last times' that I don't get to experience, and I feel a bit cheated. I'm looking back at my experiences with Jack, thinking to myself 'if only I had known that THAT was actually the last time'....anyway, I digress. James didn't get baptized. It was hard. We got over it. End of story. 
Except......my beautiful friend saw my pain, and did some special photos for me of my sweet autism baby, to celebrate his 8th year. 
She made secret plans with my amazing girls to sneak over to my house and take pictures of James while I was out. She's a professional photographer, so, of course the pictures are gorgeous, and my little dude is sooo handsome. Can I say it too many times? I really do have the best friends, and I don't know how I would have gotten through the last few years without you guys.... *sniff, sniff*.....I have been so blessed to have you as part of my village.
Anyway, Please enjoy the following pictures of my lil dude commemorating his 8th birthday.....he's going to be 10 this fall, and he looks so young here....Time flies....













Sunday, April 15, 2018

My Quirky Son

James is obsessed with Toy Story. Jack was obsessed with it when he was little too, but he outgrew it when he was about 7, which was right around when James picked it up. Jack was a die-hard Buzz Lightyear fan, James is Team Woody, or, Jessie in a pinch. I'm sure you've seen Woody lurking somewhere in just about every picture I post of James. These are a few of James Woody dolls that I saved in his special box for when he's an adult. My favorite is zombie Woody with no arms. We replace Woody pretty regularly, probably one every 6-8 weeks, depending on whether or not James is teething. We went through 3 in a month when his adult molars came in last fall lol. I spend a lot of time sewing them back up and replacing their stuffing because they are expensive to replace, usually about $35 a pop. He got some new Woody's in December.....a friend of ours works in the souvenir business and has a friend at Disney, who got us 14 Woody dolls at cost, and kindly mailed them to us in time for Christmas :) Cost means we only paid like $14 for them, which is a huge savings for us. I've said it before, and I'll say it again, we do have the Best friends, Thanks again, guys! The video of him opening them is kind of hilarious lol!



James' love of Woody and Toy Story has been long running, and he's a fixture in our household, just like he was for Andy in the Toy Story movies. When James was little, he used to recreate scenes from the movie. I did a post about it that you can read here: 

I think that's about all for this post, Thanks for reading and being a part of our lives for a bit. I've really been trying to be more open about how autism affects our lives since it's Autism Awareness month. The last post was a little sad, so hopefully this one makes up for it :)
Cheers!

Wednesday, April 11, 2018

April Is For Autism Awareness

A few days ago, I was snuggled up on the couch with James. He was watching The Jungle Book, or Mobley as he calls it, on his kindle. He was smiling and giggling as he watched the characters sing and dance around. I asked him if he was watching Mobley and he grinned at me and laughed. I started to sing along with the Bare Necessities song. He stopped smiling and laughing. He looked up at me. He wasn’t smiling. Faster than I could react, he reached up and hit me. Twice. Hard enough to stun me, hard enough to hurt my feelings. I gasped and stopped smiling. He looked at me. He was unhappy with me. I tell him ‘say sorry mom, for hitting you’. He echos me awkwardly. I look at him. I'm not smiling. He watches me for a minute. Then he laughs at me. I feel tears welling up and running down my cheeks. He goes back to watching his movie. I wondered to myself, what kind of crazy world am I living in where that is what happens when I sing along with a song? In what universe is this a normal occurrence? When did things like this become so commonplace in my life that it’s not that big a deal anymore?

And then I realize, This is life with autism. This is my normal. Things like this happen to me, my other kids and my husband every day. We make jokes about some of the things that happen, and we post lots of cute pics and videos of James on Facebook and Instagram to document the good things, but this is the reality. This is the every day struggle. This month is Autism Awareness Month. And this is my reality.



Thursday, March 29, 2018

Spring Break....Or Is It Easter Vacation?

We are coming up on the first vacation of the year :) My kids are really lucky, their breaks last a week or more, besides the odd day off for random holidays like Presidents Day. We always take the kids to do fun stuff when they don't have school, but the last few years, we have made an effort to do something that takes up the whole week. Why? Well, there are several reasons, which I will now share :)

#1. Because why not...the kids are only young once, and it takes time to get to some places so if you have a week, you have time lol. We are still regretting not taking that camping trip to Maine that got cancelled twice before Nana got married and moved out. Time flies, people, take those trips and spend time with your babies before it's too late.

#2. Because autism. Life with James requires us to push his boundaries a little on a regular basis. He would be perfectly happy sticking to his familiar routines, but by taking trips, we can incorporate his consistent love of being in the car with a little push into new adventures and experiences. It is crucial for his future development to expose him to as many "NORMAL" activities as possible, so he can progress emotionally and socially.

#3. Because caregivers need a break too. What is that old saying? "A change is as good as a rest".....I am a full time caregiver, not just for James, but for Calvin, who is also autistic, as well as bi-polar, and of course, Jonathan, Rayzel and, not so much anymore, Savannah. I'm not just a Mom, I'm an Autism Mom, so I don't get breaks unless I'm sleeping and sometimes I just need a change in order to keep doing what I do for everyone. And lets not forget that the hubby needs lots of love and care as well, not to mention the odd vacation himself and a chance to remember that he's not just a police officer, he's a much needed husband and father.

#4. Because family. A lot of our trips revolve around visiting family and friends who don't live nearby. It's hard when you have kids with disabilities, it's hard to fit in, hard to socialize, hard to make and keep friends. We value those of you who support and encourage us, and make it possible for us to be included. Therefore, we are happy to travel to Delaware, Wyoming, Texas, Colorado or even Brazil to see you.... because you are our tribe :) You accept us with all our special needs and quirky personalities. You make us feel loved, and we desperately need that.

That's all the reasons I can think of before James gets home from school, so I'll leave the list here. I am super excited to be visiting family in Chapel Hill, North Carolina this next week. We are taking Rayzel's senior pictures there as well, and she has some fun places picked out that I think even James will enjoy...think carousels, candy stores and ice cream ;)
We are also going to squeeze in a trip to visit Calvin at Job Corp in Lynchburg, Virginia, returning 3 days early from Spring Break so that Jack can visit Gettysburg with his scout troop.
Happy Easter everyone!!!!!